Gynaecologist, Specialist Pain Medicine Physician

Australian Coalition for Endometriosis

The Australian Coalition for Endometriosis (ACE) is the peak consumer and advocacy body representing the needs of girls and women with Endometriosis in Australia. ACE comprises 5 organisations, including the Pelvic Pain Foundation of Australia, Endometriosis Australia, EndoActive, the Queensland Endometriosis Association and Endometriosis Canberra.

ACE was formed in December 2017, as a response to the bipartisan Parliamentary Friends of Endometriosis Awareness group, championed by politicians Ms Nicolle Flint and Ms Gai Brodtmann. On December 5th 2018, the friends group was launched at a function attended by the Health Minister, Greg Hunt, Shadow Health Minister, Catherine King, Government Whip, Nola Marino, MP Mike Freelander, and MP Justin Lessey.

Health Minister Greg Hunt sincerely apologised on behalf of the government to the girls and women with Endometriosis who have suffered too much pain for too long. He committed the government to developing a National Action Plan for Endometriosis and announced that Endometriosis will be a targeted condition for the Medical Research Future Fund. Minister Hunt will host a round table discussion on Endometriosis in Melbourne on Feb 19th.

Dr Susan Evans and Ms Libby Parker are the Pelvic Pain Foundation of Australia representatives on ACE.

 

ACE has developed a 5-point action plan with the priorities for change:

– greater awareness of Endometriosis and it’s impact through public campaigns

– greater education at a school level for young people

– the prioritising and creation of clinical care pathways for period pain to guide health professionals in the management of severe period pain

– the accelerated investment in targeted Endometriosis research

and importantly, and overarchingly, that Endometriosis become Australia’s 10th National Health Priority Area.  

The PPFA representatives on ACE are Ms Libby Parker and Dr Susan Evans